BOSS move to help Issac

BOSS move to help Issac


Issac sitting up in bed after surgery

Removing tumours at the base of the skull used to involve removing part of the skull and exposing the brain. Now, it can be done without a single cut.

In a new, minimally invasive surgical approach, a team at Sydney Children鈥檚 Hospital, Randwick (SCH) are using the nasal cavity as a passage to access the base of the skull and remove tumours, helping to significantly reduce pain and improve recovery times for children.  

The approach, referred to as the Base of Skull Service (BOSS), is one of the first integrated paediatric multidisciplinary skull base unit in the southern hemisphere and has been game-changing for patients like eight-year-old Issac.  

Issac was diagnosed with craniopharyngioma when he was five years old. The condition causes benign tumours to grow in the central nervous system 鈥� the area of the brain that controls the ability to see, hear, smell, taste, talk, swallow and move, as well as the vessels that supply blood to the brain.  

Issac has already undergone two craniotomies, a major surgery where part of the skull is temporarily removed, to shrink the brain tumour but in recent months, it had grown back at a rapid rate.

With the tumour blocking fluid to Issac鈥檚 brain and causing him severe nausea and headaches, surgery was essential but this time, the team decided there was a better way.

Led by Dr Catherine Banks, Ear, Nose and Throat Surgeon at SCH, the team would use highly specialised, precision equipment, including the StealthStation, to delicately drill away the bone between Issac鈥檚 nose and the base of his skull to expose the tumour and give neurosurgeon, Dr Jacob Fairhall, the access he needed to remove it.

The surgery was complex, and planning was essential so with the help of the , an exact replica of Issac鈥檚 brain was 3D printed, enabling surgeons to pinpoint the location of the tumour and visualise how they were going to access it.

3D print of Issac's skull
When surgery day came, Issac was nervous but remained stoic, reassuring his mum that when he woke up, everything would be ok - and he was right. The surgery was a success and after the mammoth 11-hour operation, there were no more signs of the tumour.

鈥淰isually, to the naked eye, you couldn鈥檛 see any tumour at all. When you look at the scan it鈥檚 clean,鈥� Issac鈥檚 mum, Karol, said.  

鈥淎ll the doctors and nurses were so thrilled, we were thrilled. It鈥檚 an amazing result.鈥�

BOSS team removing Issac's tumour
Dr Banks said the surgery and Issac鈥檚 recovery was testament to the multidisciplinary team, compromising of more than 20 different experts, and shows how vital the BOSS service is.

鈥淚t鈥檚 actually amazing how well he is doing. I went in and saw him the very next morning [after his operation] and he was awake, gave me the thumbs-up, even with the ventilation tube in,鈥� Dr Banks said.

鈥淭hen I walked past one day and he was sitting up in the ICU doing a Rubik鈥檚 cube in 36 seconds.鈥�

Three weeks on, Issac is not just back home, but back at school with no pain and no wounds to show for his surgery. There is a chance the tumour will return but with the ability to manage his condition endoscopically through BOSS, Issac鈥檚 life can continue as normal.  

The Base of Skull Service is proudly supported by , who have contributed more than $2 million over three years to fast-track this transformative care.