Cardiac psychology service information sheet
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Psychology Service at the Heart Centre for Children
(02) 7825 0088
Please leave a message and we will return your call as soon as possible.
Introduction
The Cardiac psychology service is free and available to children and families affected by childhood heart disease in NSW. Psychologists at the Heart Centre for Children provide emotional care for children and families affected by heart disease.
A child鈥檚 diagnosis and treatment for a heart condition can be challenging for the whole family. Being scared, overwhelmed and uncertain are common feelings. These feelings can place strain on families.
At the Heart Centre for Children, we are committed to supporting children and families throughout all stages of their medical and emotional care. We work as a team to provide the best possible support, based on research evidence and feedback from families.
How we can help
There are many different ways our psychologists can assist families:
- Helping your baby or child to cope with any difficulties they may be having in relation to their heart condition, treatment or hospital stay, as well as other aspects such as difficulty sleeping, feeding, or feeling worried at home or school.
- Providing parents with an opportunity to talk about their experiences, including any worries or concerns they may have, or any challenges they may be facing.
- Supporting parents who receive their baby鈥檚 diagnosis during pregnancy, including help to prepare emotionally for the birth and postnatal care of their baby.
- Supporting families who are considering genetic testing to better understand whether their child may have a genetic heart condition.
- Helping children and families to cope after the diagnosis of a heart rhythm condition, including adjusting to changes in exercise and lifestyle.
- Supporting siblings to better understand their brother or sister鈥檚 heart condition and to cope with the changes in routine that may occur during hospital stays.
- Assisting grandparents and other family members to feel 鈥榠n the loop鈥� and to manage any difficulties they may have during challenging times.
- Providing care for bereaved parents, siblings and other family members.
Common misunderstandings about psychology
鈥淚sn鈥檛 psychology just for crazy or weak people?鈥�
Many families who contact our psychology service have never thought about seeing a psychologist before. Stress is a natural and understandable response to a child鈥檚 diagnosis and treatment, and feeling this way does not mean you are 鈥榗razy鈥� or 鈥榳eak鈥�. A psychologist can help you or your family find ways of coping with the stress and uncertainty of childhood heart disease, especially when times are challenging.
鈥淚s psychology all about positive thoughts?鈥�
The challenges that families experience following their child鈥檚 diagnosis are real. One of the things families find most helpful about seeing a psychologist is being able to talk about all of their thoughts and feelings. This includes the good and the bad. Having space to talk about these things, without feeling like you need to put on a brave face or worry about burdening the other person, can be a big relief.
鈥淎 psychologist can鈥檛 fix my child鈥檚 heart, so how can it help to talk about it?鈥�
There may be times when you feel the only thing that can help is making your child better. It is natural and understandable for this to be your focus, particularly if your child is very unwell. While our psychologists can鈥檛 take your child鈥檚 heart condition away, they can support you and your family in finding ways to cope with the challenges ahead. Many families find it can help to talk about their experiences, even when it doesn鈥檛 change the situation they are faced with.
鈥淚s psychology just for mums? Should dads be able to cope on their own?鈥�
Dads can often miss out on accessing support for a number of reasons. Some dads may find it difficult to ask for support or feel they should be able to cope on their own. Others may find it hard to find the time to access support. Our research at the Heart Centre for Children shows that dads appreciate being included in the support process and find it helpful to talk about their experiences. For some dads, this may be the first time they have been asked how they are doing.