Cystic fibrosis, Sydney Children's Hospital, Randwick

Contact

General enquiries: (02) 9382 1477

Appointments: (02) 9382 1471

Location: Respiratory department, level 0, South West Wing (Ainsworth Wing)

About our service

The Cystic Fibrosis clinic provides comprehensive outpatient care for all aspects of cystic fibrosis, through a diagnostic and consultative ongoing care framework.

We are also home to the .

Referral process for clinicians

Our department is using to manage referrals.鈥疶he Consultmed platform allows health professionals to send e-referrals to us securely. 鈥� 

Consultmed questions and technical support: [email protected]

Referral and appointment process for parents and carers

Request a referral

To make an appointment at our clinic, you will need a referral from your GP, paediatrician or specialist. 

They will assess your child, discuss your concerns, and make a referral to the appropriate service.鈥� 

Track your referral

Our department uses Consultmed to manage referrals. Your referring clinician sends the e-referral to us using the secure Consultmed platform.鈥� 

Once we receive the referral, we will send you an email with your tracking information. We will update you as we process the referral and book your appointment. 

To receive these updates, please ask your referring clinician to include your email on the referral.鈥� 

If your clinician has questions about Consultmed or require technical support, they can contact [email protected].  

Need support?

If you need help or have questions about the referral and appointment process, please contact us.鈥� 

General enquiries: (02) 9382 1477

Appointments: (02) 9382 1471

Clinic information

The Cystic Fibrosis service provides:

  • Inpatient and outpatient treatment services
  • New diagnosis education, ongoing management and support
  • Outreach service including school and home visits, community liaison
  • Clinical research

Clinic location: Cystic Fibrosis services are provided through our respiratory department, located on Level 0, South West Wing (Ainsworth Wing) of the Hospital. 

Where required, Cystic Fibrosis patients will be admitted to one of the general or specialist wards for inpatient treatment.

Our research

The Microbiome, Gastroenterology And Pancreas (MiGAP) Research Group is one of the world鈥檚 leading gastroenterology research groups in Cystic Fibrosis (CF) and paediatric pancreatitis. 

Support services

A smiling Aboriginal family.
Our Aboriginal Hospital Liaison and Education officers play an important role in the care and welfare of and advocacy for Aboriginal patients and families, helping ensure a responsive and respectful patient journey.
A young girl sits on her mother's lap on a hostpital bed.
We can arrange a free interpreter for you. Interpreters are available for over 50 languages. Tell us which language you speak when your child is admitted, or let your nurse know.
A mother sits with her baby at a laptop.
Virtual care, previously known as telehealth, allows patients. their families and carers to access healthcare services without leaving their home or community.