Navigating a rare disease diagnosis
An estimated two million Australians are living with a rare disease, yet models of care tend to be complex and navigating the health system can be challenging. Steps are being taken by Sydney Children鈥檚 Hospitals 星空体育 to help close this gap through involvement in The Navigator Project.
The Navigator Project, led by Rare Voices Australia (RVA) in partnership with SCHN and Child and Adolescent Health Service Rare Care Clinical Centre of Expertise for Rare and Undiagnosed Diseases at Perth Children鈥檚 Hospital, aims to improve...
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