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More than $18.7 million in funding has been allocated to researchers across SCHN through the latest MRFF grant.

Two SCHN staff have been successful in securing funding for projects under the inaugural NSW Health Sustainable Futures Innovation Fund.

Public health information will continue to be updated on this site.

At 14months old, Weston has already made history, becoming the first, and oldest known surviving child in Australia with Wolman’s Disease.

Run your own race and find your cheerleaders along the way. That is the advice Melissa, mother of 18-year-old Lili, wants to share with the two million Australians impacted by rare diseases.