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Epidermolysis Bullosa Handbook
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Alexis' Story

Alexis' story

Alexis' story

Alexis' Story: Life with Epidermolysis Bullosa

Alexis' Story: The Emotional Impacts of Epidermolysis Bullosa for parents

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Epidermolysis bullosa handbook

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Last updated Monday 13 January 2025

Sydney Children’s Hospitals �ǿ�� acknowledges that our facilities are built on the lands of the Bidjigal, Cammeraygal, Burramattagal, Cabrogal, Wangal, and Woddi Woddi. Our services extend across the lands now known as New South Wales.

Aboriginal people believe these lands hold the ancestral spirits of those who have come and gone before them.

We acknowledge this is, was, and always will be, Aboriginal land.

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