Antenatal consultations
Our Spina Bifida services provide antenatal consultations across both hospitals.
Families that are pregnant with a child with a Neural Tube Disorder (NTD) such as Spina Bifida may require this service.
What is an antenatal consultation and when does it happen?
The aim of these consultations is to provide families with information and answer their questions about Spina Bifida. Generally, they occur from week 18-22 of pregnancy after a referral from an obstetrician.
Who provides the consultation and what do they talk about?
The consultation is provided by the paediatric rehabilitation specialist and the social worker.
The medical specialist will talk about
- what Spina Bifida is
- how and when in the development of the foetus Spina Bifida occurs
- likely effect on the child鈥檚 overall development including mobility, learning and other medical issues
Information about functional and developmental impacts is only an indicator of the diagnosis and is based on an early ultrasound scan.
The social worker can
- advise on social and emotional aspects of raising a child with a disability
- provide information about economic and social supports available in the community to assist with parenting
- the social worker is available for supportive counselling as well.
After the consultation
Some parents may feel overwhelmed with the information provided at the consultation and the possible details of a big life change.
Parents are encouraged to make contact with the service to clarify and ask any further questions they may have.
The service is available to support families to better understand Spina Bifida and the possible impact on their lives.
Accessing antenatal consultations
The obstetrician or clinician will have picked up some findings on the ultrasound suggestive of Spina Bifida. They will make a referral to the Spina Bifida service for a consultation. The Spina Bifida Resource 星空体育 (USA) on what Spina Bifida is.
Where to find us
In New South Wales, all three children鈥檚 hospitals have a Spina Bifida Service. Your child will be referred to the one that serves your local area.
To contact the Spina Bifida Service, you can call the secretary:
Spina Bifida Team, Kids Rehab at Children鈥檚 Hospital Westmead
(02) 7825 0833
[email protected]
Spinal Dysraphism Clinic, Rehab2Kids at Sydney Children鈥檚 Hospital Randwick
(02) 9382 0178
[email protected]
HNEKidsRehab at John Hunter Children鈥檚 Hospital
(02) 4925 7963
[email protected]