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At 14months old, Weston has already made history, becoming the first, and oldest known surviving child in Australia with Wolman’s Disease.

Run your own race and find your cheerleaders along the way. That is the advice Melissa, mother of 18-year-old Lili, wants to share with the two million Australians impacted by rare diseases.

New design drawings of Sydney Children's Hospital Stage 1 and Minderoo Children's Comprehensive Cancer Centre (SCH1/MCCCC) highlight private family spaces, diverse play and recreation areas, and an emphasis on natural light and nature within the new building.

Main construction is underway on a new Paediatric Services Building at The Children's Hospital at Westmead to better support patients like Mia, who require acute or critical healthcare across multiple departments.

Dr Bhavna Padhye and Dr Rebecca Poulos have been awarded a joint fellowship to support a translational project for paediatric cancer.