Kids rare diseases
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Milla's story: our approach to complex care
Watch Milla's story to learn more about our multi-disciplinary model-of-care for diagnosing and treating complex and rare medical conditions.
Milla lives with a complex condition. She relies on more than 10 teams across The Children's Hospital at Westmead for her care.
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At three years old Angelina was diagnosed with a rare genetic disorder called calcium/calmodulin dependent Serine protein Kinase (CASK) deficiency. But despite the unknowns, she continues to defy expectations.
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