Georgia鈥檚 story
Georgia began her life as a very healthy baby however in November 2016 she began having recurrent high temperatures and stopped walking, preferring to be picked up and carried. This was not like our active little girl and we could see she was in pain.
After multiple doctors鈥� visits, tests and examinations Georgia was diagnosed with CRMO.
We began treatment with low doses of medication but it soon after it became clear she having a significant 鈥榝lare up鈥� and we were admitted to The Children鈥檚 Hospital at Westmead.
Georgia鈥檚 future is looking bright and she鈥檚 becoming her happy fun loving self again
CRMO is a condition where the bones swell which causes pain and soft tissue swelling, and sometimes high temperatures. It鈥檚 known that with the right treatment CRMO may go into remission and the chance of flare ups is reduced.
There isn鈥檛 much information available online about Georgia鈥檚 condition, but having access to the great doctors and a supportive health care team at Westmead has meant we have found out as much as we could about CRMO. We are now in a much better position to monitor Georgia鈥檚 health and progress, and respond to any flares if they occur.
Several parts of Georgia鈥檚 body are affected, which was why she initially stopped her using her arms and legs, but now after 7 months of treatment Georgia is walking again with limited pain. We don鈥檛 know when or how many flare ups she鈥檒l have but we hope that as she gets older these will lessen in frequency and severity.
Alicia, October 2017