Benefits and risks

What are the benefits of Selective Dorsal Rhizotomy?

Benefits are closely related to the child鈥檚 goals and GMFCS level.

Reported benefits

Benefits after SDR, as reported in worldwide scientific research literature:

  • Much less spasticity in the leg muscles
  • Improved gross motor skills and mobility
  • Improved way of walking and walking distance
  • Less pain from stiff muscles
  • Improved self-care activities
  • Improved quality of life

Lived-experience benefits

Australian families have also told us other ways in which SDR has helped their child:

  • Keeping up with friends in the playground
  • Able to sit cross legged with friends in the classroom
  • Improved mood eg. happier, more confident
  • Able to get around more independently

Long term benefits

Other long term benefits we have seen:

  • Less need for Botulinum toxin-A injections
  • Less number of orthopaedic procedures needed
  • Less need for anti-spasticity oral medicines

What are the risks of Selective Dorsal Rhizotomy?

As with any surgery, there are risks.

Information we have recorded from SDR surgeries done in Australia which were multilevel surgeries:

In the early recovery (first 1- 2 weeks) after SDR

Based on SDR surgeries in NSW, we found the most common problems in the early days were:

  • Post op pain 100%. This is managed so that your child is as comfortable as possible.
  • Constipation 86%
  • Nausea and vomiting 82%
  • Unusual sensitivity in the skin of the feet or legs 64%
SDR recovery in the first 1-2 weeks diagram

During the first 4-6 weeks after SDR

We have a Registry which records results for children who have had SDR surgeries in Australia. Problems recorded during their hospital stay were:

  • Delay in wound healing 10%
  • Infection 5%
  • Wound infection 2% and Pressure area 2%
  • Other 6%
SDR recovery first 4-6 weeks diagram

Of these problems, 3% needed a minor operation for treatment.

The doctors will give your child medicine to help with pain and stop infection.

Long term outlook after SDR

According to scientific research literature worldwide:

  • 33% had abnormal spinal curve/s. This is similar to the rest of the CP population, and relates to the child鈥檚 GMFCS level
  • 50% had occasional mild back or leg pain
  • 50% needed orthopaedic surgery.

Comparing the benefits and risks

To make the decision that is best for your child, it鈥檚 important to think about the benefits and risks related to SDR compared to other spasticity treatments.

What is usually involved?

Spasticity treatments:

  • Continue with regular treatments that lessen spasticity ie. Botulinum toxin-A injections, medicines, casting.

SDR surgery:

  • Hospital admission
  • Intensive rehab after SDR

What are the benefits?

Spasticity treatments:

  • Less spasticity for a short time
  • Your child:
    • will not have the risks of surgery
    • will not need to miss school for a term
    • will not need to take part in intensive rehab for 1 to 2 years.
  • Exercise and over-the counter medicines can be used to treat pain if needed

SDR surgery:

  • Much less spasticity permanently
  • Less need for regular Botulinum toxin-A injections and oral medicines
  • It is likely to reduce muscle spasms and pain in the legs

What are the risks?

Spasticity treatments:

  • Side effects related to Botulinum toxin-A injections and medicines
  • Increased muscle tightness making it difficult to do daily activities

SDR surgery:

  • Side effects related to the SDR surgery and anaesthesia

Keep in mind

Your personal feelings and thoughts are valued and important. Looking at the 2 options, consider what matters most to you as a family.